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You might think of the word overwhelmed as a word that describes somebody who is in too deep, trying to get it together, might just have too many things on their plate. We can’t say that I share that type of overwhelmed, but I can say that I share it in the sense that we are having a hard time with our emotions as we feel the great sense of generosity among our family and friends, as well as many people whom we just met or have never met before. It is truly amazing how people feel attached to something and begin to open their hearts and wallets to support something that they have never had any connection to before.

As we close on our fundraising for the Great Strides Walk at Georgia Tech last Saturday, we can’t help but feel overwhelmed as we cross over the $22,000 mark for fundraising, and that is only Team Sutton Grace. We have about 65 people planning who attended the walk and it was a huge success.  There were over 2,000 people at the walk bringing in over $1.3 million.  That is A LOT of tomorrows.  We are humbled and honored to have so many generous, caring and dedicated friends and family.  We also got to see several familiar faces; CF doctors, nurses, nutritionists and her crew from 5 West was there with a team.  What a joy for us all to meet up for something so positive out of the hospital environment.  It is also good to see that the people caring for Sutton and supporting us are just as involved as we are at finding a cure.


We recently had our checkup at the CF Clinic on May 9.  We couldn’t ask for a better report. Sutton is gaining weight at a steady rate, maintaining at or above 75th percentile with high hopes of a successful lung function later in life.  She sounded almost completely clear and as always, had a big smile on her face.  We were given the go ahead to, again, skip a month and revisit in 2 months for her next follow up.  The doctors feel confident in her current health and we are back to our “normal” routine.


Guess who is going to be a star? Sutton has her debut on Fox 5 News, May 20, 2013 at 5pm.  The news team came to the house to film a story around Sutton.  It was a great experience with both of the reporters who came to the house.  They were not only very professional, but they were very helpful while they were here working with Sutton.  We had two great visits from the team and were able to reveal some of Sutton’s story to be shared.  Be sure to keep a look out for the story.  If you miss it, we will be sure to post a link and a copy of the clip online.


3 responses »

  1. Lynn Cherpak

    Love it! ..and love that baby girl, Sutton Grace!

  2. She is adorable. I just leaned today she goes to the school where my daughter is and where her MiMi is the director. Your daughter is a true blessing and the fact that she smiles shows her true strength.

  3. I had the pleasure of walking alongside Sutton’s grandmother for a portion of Saturday’s walk. I am an adult with CF and would love to keep in touch. Hope beautiful Sutton is having a great week!


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