After Sutton’s story aired on Fox 5, there has been a growth in her public appearance requests. She is filling our schedule with other engagements and we might need a secretary to keep track of it all. She never ceases to amaze us with her addicting smile and happy attitude for everything she goes through. Each day is getting easier for us as we keep up with her routine of care and the same proves true for Sutton as we move forward. Our growth in followers for this blog is growing steady and proving to be a great channel of awareness for CF and Sutton’s story. Of course we want the world to know about Sutton, but the most important thing is that people know how her story fits into CF and more people are aware of it. We feel the momentum and want to keep it going for a cure. That cure is around the corner and we are going to get this thing fixed forever.
I’m guessing you are wondering what a Miracle has to do with all of this…Sutton was selected, following a nomination by a hospital staff member, to be Children’s Miracle Network “Miracle Child” for 2014! She will be one of four amazing kids to help represent the foundation that supports the hospital she is treated in as well as a fresh face for staff and employees to see in media throughout the CHOA Hospitals in Atlanta. This is such an honor and a great way for Sutton to raise awareness for CF, CHOA and Children’s Miracle Network. We look forward to sharing more of her story to others as well as her smile.
We recently shared Sutton’s story with a group of anonymous donors who built 70 bicycle for the CF Foundation here in Atlanta. The event is a team building exercise where 139 individuals are given a few hours to build bicycles for some deserving people. CFF was the recipient of these bicycles and will use them as a means of encouraging CFers to exercise. Exercise is an excellent way to increase lung function and also serves as a means of lung clearing from sticky mucus build up. Sutton is a little ways from a bike, but we are excited to see others have an opportunity to have fun while receiving therapy. After all, its better than sitting on the couch with a vest for 30 minutes!
Thanks to all of you for following our story. We will keep you all updated on events she is attending and how you might be able to be engaged. We look forward to a happy and healthy future as well as a successful future for CF, CHOA and Children’s Miracle Network.