Author Archives: brittanywburnett

Hard to believe that a year has passed since we’ve talked about Great Strides!

Thank you, thank you, thank you again for helping Team Sutton Grace raise over $100,000 in just 2 years! We continue to learn more about all of the exciting advancements and additional research on the horizon and we are getting SO very close to finding a ‘cure’ for cystic fibrosis (CF) but still want and need your help!

As you know, our sweet Sutton is now 2 ½ and growing more each day. We’ve been so fortunate and survived a tough winter without any hospital stays in about 15 months (whew!). She’s growing and talking more each day which is so fun to watch!

In addition to all of the fun, we continue to fight a tough battle to keep her healthy. Every. Single. Day.

We couldn’t do it without all of the support and encouragement from each of you and for that, we are forever grateful.

Each year, the Cystic Fibrosis Foundation (CFF) hosts their biggest fundraising event, the Great Strides Walk.

The 2015 Great Strides Walk will be on Saturday, May 16th and will once again be held on the Georgia Tech campus. We had about 70 people come out last year and would love if you could join us again this year!

The walk starts at 9:00am (registration is at 8:00) and is an easy 5k walk around the school campus. Food, drinks, music, and fun make it a great morning for all.

And yes, for those of you wondering, we will have a new limited edition Team Sutton Grace shirt for anyone donating $25 or more!

If you can join us on May 16th, simply click on the link below and click on ‘Join Our Team’ and you can do some personal fundraising on your own if you’d like. Once you register and will get a personal link that you can send to friends, family, neighbors, your mailman, and anyone else who can join us in the fight (if you are comfortable doing that). Easy peasy.

If you can’t walk with us on the 16th , you can click on the link below then click on ‘Donate to a Team Member’ button so you can support us in spirit if you wish.

http://fightcf.cff.org/goto/teamsuttongrace

We will send more details as the walk gets closer, but if you have questions, feel free to let me know. Sutton hopes to see each of you in May!

Thank you, thank you, thank you for ‘adding more tomorrows’ for my sweet Sutton and all of those with CF everyday.

Whew!–we’ve had alot happening over the past 2 weeks! Thank you again for all of your support as we continue to navigate this journey together.
On Saturday, November 3rd, Jeff and my cousin, JV Gortney, participated in the Aptalis CF Cycle for Life. The event was a 30 mile bike ride through the Serenbe community (just south of Atlanta) and was a HUGE success thanks to your contributions and support. To date, we’ve raised nearly $8,000 for Team Sutton Grace and were one of the top fundraising teams for the entire event! Jeff was the top overall fundraiser for the entire event and JV was one of the top fundraisers too! All of this happened in just 9 days–wow! We think that next year, their team name might just be the Silent Ninjas (watch out they come out of nowhere!).
I brought Sutton to the event and we bundled up while Jeff and JV rode for a couple hours. We met some other CF families and Sutton’s doctor even rode that morning! A great day overall and one that keeps us even more encouraged to find a cure.
We continue to be overwhelmed and humbled with all of your support.
If you are still interested in donating, you have about 2 weeks left to contribute–simply click on the link below and help us find a cure for CF!

http://www.cff.org/LWC/JeffreyBurnett

The following weekend, both Hiatt and Sutton managed to get their first colds of the season (and Sutton’s first cold ever). Little Sutton sounded like Darth Vader for a couple days but thankfully didn’t ever have a fever. It was my first call to the CF Clinic after hours but they assured me that we were doing all of the right things to keep her on the mend. Thank goodness for saline and those little bulby nose suckers! Both kids are feeling better and we are working to get all immune systems strong for Thanksgiving which will be lots of time with our awesome families!

We went in for Sutton’s 4 week checkup on Monday Nov 12th and she is now at 8lbs 6oz so she’s gained an entire pound since she entered this world–yay!  The enzymes we feed her before every meal seems to be working and helping her absorb the nutrients her body needs to get big and strong. She’s still on the small side for her age, but if she’s anything like her big brother Hiatt, she will catch up in no time!

Lastly, we need your signatures! We are just weeks away from devastating budget cuts that will jeopardize critical research and the swift approval of new medicines for people with CF.These cuts will damage many programs that improve the lives of people with cystic fibrosis, from studies that help improve nutrition for babies with CF to the review process that ensures new drugs are safe and effective. We can’t let them slow our march toward a cure.The clock is ticking: the window of opportunity for our elected officials to stop these cuts is rapidly closing. Congress needs to hear from you. Our elected officials can and should fix our deficit while protecting these important investments that save lives.

Please click here to let Congress know that we cant stop the progress towards a cure!
http://nu.salsalabs.com/o/50674/p/dia/action3/common/public/?action_KEY=7983

Until next time—